“Be Aware. Share. Care: Strengthening Education to Bridge the Thalassaemia Care Gap.’’ Would Thalassemia Day.




Thalassaemia is a inherited disorder where the oxygen-carrying proteins in the blood – also known as haemoglobin – and red blood cells are lesser than normal. This further leads to fatigue, weakness and slow growth of the body. While mild forms of the disorder may not require treatment, the serious forms may need blood transfusion or donor stem-cell transplant. It is important to understand the disorder, how it is inherited and how it affects the body to plan the treatment options. To create more awareness regarding the disorder, World Thalassaemia Day is celebrated every year. As we gear up to celebrate Thalassaemia for this year and create more awareness regarding this disease.


Theme:

This year, the theme of World Thalassemia Day is ‘Be aware. Share. Care.’ It is an open call to work with global communities in raising awareness about Thalassemia and its possible treatment options.

“Be Aware. Share. Care: Strengthening Education to Bridge the Thalassaemia Care Gap.’’

 Be Aware. Share. Care.

The International Thalassaemia Day 2023 highlights the empowering force of education and its association with appropriate and quality care of this disorder.

Building on last year’s successful theme, the 2023 campaign, entitled ‘BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap’, takes a further step ahead and focuses on the need for improved access to quality, lifelong thalassaemia education for people living with the disorder and healthcare professionals involved in their care.

By maximizing the knowledge and skills of every person affected by thalassaemia and the people who care for them, we can achieve positive changes in health behaviours, health outcomes and quality of life, and reduce the disease burden for patients and the society!

 Better Education for Better Care

Thalassaemia affects about 300 million people worldwide, with about 500,000 having a severe form of the disease. 80% of these people live in low and middle-income countries (LMICs) and face many and multiple unmet needs and persisting challenges with regards to the health, social and other care they receive.

We need to help change that!

People living with thalassaemia need access to ongoing, disease-specific education to better understand their condition and assert their basic right of equal access to appropriate care.

Thalassaemia-treating physicians must know how to detect early and accurately diagnose the condition, interact effectively with competent authorities and provide patients with the best possible care.

"Donate Blood Save Lives".

Reference: International Thalassemia Foundation, Hindustan Times.

https://cgd-sharia.blogspot.com/2023/02/close-care-gap-world-cancer-day-2023.html



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